There is widespread recognition that service users and carers are experts, with an in-depth knowledge of mental health services and of living with mental ill-health. No one else, no matter how well trained or qualified, can possibly have had the same experience of the onset of mental ill health, the same initial contact with local services or the same journey as you.
Your voice is an important resource that can help to improve individual packages of care as well as mental health services generally. In addition sharing your expertise and experiences can help with your own recovery, lead to new ideas, improved ways of working, and services to become more relevant to local needs.
Not everyone is able to attend meetings, or has the capacity to join in during standard working hours, however YOUR VOICE MATTERS! Here we will share requests for your feedback, surveys and consultations from organisations and services which are seeking your expert knowledge that you can complete in your own time. Check back regularily for more opportunities as they arise.
TikTok and Eating Disorders: Your Experience
Beat
Beat are running a survey to better understand how people interact with eating disorder related content on TikTok and what their experiences have been. All responses are anonymous and will help us to support those affected by eating disorders and inform efforts to reduce online harm.
We’d love to hear from anyone in the UK who:
- Has experienced, is currently experiencing, or suspects they may have an eating disorder and has used TikTok (currently or in the past).
(No formal diagnosis or treatment history is required to take part.)
- Has supported someone with an eating disorder, or been concerned about someone, and has either used TikTok themselves or observed others using it.
Understanding your views of using digital self-help for people with disordered eating or eating disorders
National Institute for Health and Care Excellence (NICE)
If you have an eating disorder, now or in the past, or are a parent, carer or guardian of someone who has an eating disorder we would like to ask you to respond to this survey.
People with eating disorders use disordered eating behaviour as a way to cope with difficult situations or feelings. This behaviour can include limiting the amount of food eaten, eating very large quantities of food at once, getting rid of food eaten through unhealthy means (e.g. making themselves sick, misusing laxatives, fasting, or excessive exercise), or a combiniation of these behaviours).
NICE is inviting people with experience of disordered eating or eating disorders to respond to this survey. We want to hear your views on digital self-help as a way to treat eating disorders. A digital therapy may be a health technology that involves the use of a mobile app, website or artificial intelligence.
The survey responses will be collected and then presented to our independent committee who decides on whether digital self-help technologies can be proposed as one possible way of treating disordered eating or an eating disorder.
This short survey asks about people’s experience of using digital self-help technologies, or views of this type of technology if they haven’t used them yet, as part of treating their eating disorder. You do not need to have used any digital therapies in the past to answer this survey, we would like views from both people who have and haven’t used digital therapies.
This survey is designed to be completed by people aged 18 and over. We also welcome parents or carers of children younger than 18, to complete this survey on their behalf.
Peri-natal co-production session: Engagement opportunity
Adferiad
Peri-natal co-production session: Engagement opportunity
We are looking for any parents or caregivers with lived experience of accessing perinatal mental health services in Cardiff and the Vale. We are inviting individuals to participate in an upcoming co-production session designed to shape the future of perinatal support groups. We are looking to see what these groups should include and how they should be structured.
Session Details: Date: Wednesday, 30th April 2025
Time: 13:30 – 15:30
Location: Room above Aroma Cafe, Cardiff Royal Infirmary
We are seeking up to six participants, and expressions of interest must be submitted by Tuesday, 22nd April 2025.
If you would like to be involved in future co-production opportunities relating to mental health services and receive renumeration for your participation, you can attend this session through Caniad. To register with Caniad, complete the attached membership form or visit their website: Caniad CVUHB – Adferiad.
Sesiwn cydgynhyrchu amenedigol: Cyfle ymgysylltu
Rydym yn chwilio am unrhyw rieni neu ofalwyr sydd â phrofiad bywyd o gael mynediad at wasanaethau iechyd meddwl amenedigol yng Nghaerdydd a’r Fro. Rydym yn gwahodd unigolion i gymryd rhan mewn sesiwn cydgynhyrchu sydd ar y gweill a gynlluniwyd i lunio dyfodol grwpiau cymorth amenedigol. Rydym am weld beth ddylai’r grwpiau hyn ei gynnwys a sut y dylid eu strwythuro.
Manylion y Sesiwn: Dyddiad: Dydd Mercher, 30 Ebrill 2025
Amser: 13:30 – 15:30
Lleoliad: Ystafell uwchben Caffi Aroma, Ysbyty Brenhinol Caerdydd
Rydym yn chwilio am hyd at chwech o gyfranogwyr, a rhaid cyflwyno datganiadau o ddiddordeb erbyn dydd Mawrth, 22 Ebrill 2025.
Os hoffech fod yn rhan o gyfleoedd cydgynhyrchu yn y dyfodol sy’n ymwneud â gwasanaethau iechyd meddwl a derbyn tâl am eich cyfranogiad, gallwch fynychu’r sesiwn hon trwy Caniad. I gofrestru gyda Caniad, cwblhewch y ffurflen aelodaeth sydd ynghlwm neu ewch i’w gwefan: Caniad BIPCAF – Adferiad.
How communities have their say
Llais
- Have you given feedback to health and social care services?
- How have you provided the feedback?
- What have service providers or decision makers done with your feedback?
We have partnered with ACCESS Learning to research how feedback drives improvements in Welsh health and social care services.
Let us know how you have your say about services you have received, and what difference you think it makes.
We’re gathering your experiences to directly influence policy makers, governments, and service providers. Your voice will make a difference!
Take our quick survey now and help us ensure services truly meet your needs.
Survey is open until 23 March 2025.
Aspiring Board Members Programme
Welsh Government, NHS Wales, and Academi Wale
Are you a talented individual from a Black, Asian, or minority ethnic background (including Gypsy, Roma, and Travellers) interested in making a difference in the health sector in Wales? The Aspiring Board Members Programme is here to help you become ‘board ready’ for Independent Board Member roles within NHS Wales. The programme is being delivered in partnership by Welsh Government, NHS Wales, and Academi Wales, and is a key commitment of the Anti-racist Wales Action Plan.
The Aspiring Board Members Programme is a comprehensive 12-month leadership development initiative which will include:
- Learning Events: Focused on building your knowledge, understanding, and confidence to excel as a Board Member.
- Board Placements: Gain hands-on experience with a host board, supported by a sponsor who is an existing board member.
- Independent Leadership Coaching: Personalized coaching to enhance your leadership skills and professional development.
Click here to learn more about the programme